{"id":220,"date":"2019-05-21T21:38:03","date_gmt":"2019-05-21T19:38:03","guid":{"rendered":"http:\/\/stomiazwesola.pl\/?p=220"},"modified":"2019-05-21T21:50:56","modified_gmt":"2019-05-21T19:50:56","slug":"worldibdday2019","status":"publish","type":"post","link":"https:\/\/stomia.wesolek.care\/index.php\/2019\/05\/21\/worldibdday2019\/","title":{"rendered":"#worldibdday2019"},"content":{"rendered":"\n

\u015awi\u0119tuj\u0119 z wielu powod\u00f3w: moich urodzin, urodzin mych\nbliskich, z okazji dnia Matki, w Dzie\u0144 Dziecka, 8 marca (Dzie\u0144 Kobiet dla tych\nzagubionych). <\/p>\n\n\n\n

W tym roku r\u00f3wnie\u017c 19 maja<\/strong> bra\u0142amczynny udzia\u0142 w bardzo wa\u017cnym dla mnie wydarzeniu. Uczestniczy\u0142am w celebrowaniu \u015awiatowego Dnia Nieswoistych Chor\u00f3b Jelit.<\/strong><\/p>\n\n\n\n

\u015awi\u0119towa\u0107 mo\u017cna na wiele sposob\u00f3w. Ja, My \u0141\u00f3dzcy Zapale\u0144cy\nr\u00f3wnie\u017c zrobili\u015bmy to po swojemu.<\/p>\n\n\n\n

Jeszcze w styczniu powiedzieli\u015bmy sobie, \u017ce w tym roku IBD Day zaplanujemy i przygotujemy z odpowiednim wyprzedzeniem. \u017beby nie mie\u0107 sraczki poza t\u0105, kt\u00f3r\u0105 niekt\u00f3rzy z nas i tak maj\u0105 na co dzie\u0144.<\/p>\n\n\n\n

No takie by\u0142y ch\u0119ci. Na zamiarach si\u0119 sko\u0144czy\u0142o. Wszystko\norganizowali\u015bmy na ostatni\u0105 chwil\u0119. Ale dobrze. Spieli\u015bmy si\u0119. Jeszcze bardziej\nzbli\u017cyli\u015bmy. I sp\u0119dzili\u015bmy cudowny czas. Cho\u0107 no, zawirowa\u0144 by\u0142o co nie miara.<\/p>\n\n\n\n

Ale efekt by\u0142 zacny. <\/p>\n\n\n\n

IBD rozci\u0105gn\u0119li\u015bmy na ca\u0142y weekend. <\/p>\n\n\n\n

Pierwszego dnia odby\u0142y si\u0119 wyk\u0142ady. Niestety na nich nie by\u0142am. (Nie z mojego wrodzonego lenistwa a z konieczno\u015bci. Mia\u0142am przedostatni dzie\u0144 zaj\u0119\u0107 j\u0119zyka migowego.) Z tego co wiem wszystko posz\u0142o \u015bwietnie. <\/p>\n\n\n\n

Zorganizowali\u015bmy fundusze i mogli\u015bmy zaprosi\u0107 naszych go\u015bci, przyjezdnych oraz samych siebie na wsp\u00f3lny obiad. Nie b\u0119d\u0119 s\u0142odzi\u0107 jak by\u0142o fajnie i cudownie. Moim zdaniem najlepszym \u015bwiadectwem tego by\u0142y s\u0142owa Martyny, kt\u00f3ra przyby\u0142a do nas po raz pierwszy i napisa\u0142a \u201dOd soboty ci\u0105gle o Was my\u015bl\u0119 (\u2026). Jeste\u015bcie mega \u015bwietnymi lud\u017ami, atmosfera by\u0142a tak wr\u0119cz rodzinna (\u2026). D\u0142ugo si\u0119 zastanawia\u0142am czy do Was nie napisa\u0107 i pozna\u0107, a teraz nie \u017ca\u0142uj\u0119. Potrzebuj\u0119 Was i bardzo chc\u0119 by\u0107 \u0141\u00f3dzkim Zapale\u0144cem (\u2026) Dzi\u0119kuj\u0119 za t\u0105 sobot\u0119 (\u2026).\u201d<\/em> Oce\u0144cie sami.<\/p>\n\n\n\n

Niedziela, niedziela. Zapale\u0144cy ruszyli ok. godziny 16.<\/p>\n\n\n\n

Rozdali, rozdali\u015bmy: <\/strong>ca\u0142\u0105 mas\u0119 ulotek, kilkaset papier\u00f3w toaletowych, 100 balon\u00f3w i wiele informacji. Wyszli\u015bmy z cienia<\/strong>. Pokazali\u015bmy<\/strong>, \u017ce istniejemy. Pokazali\u015bmy<\/strong>, \u017ce istniej\u0105 nasze choroby. Pokazali\u015bmy<\/strong>, \u017ce nie wszystko jest widoczne dla oczu. Pokazali\u015bmy<\/strong>, \u017ce nie wstydzimy si\u0119 tego kim jeste\u015bmy. Pokazali\u015bmy<\/strong>, \u017ce choroba obdziera nas z intymno\u015bci. Pokazali\u015bmy<\/strong>, \u017ce ust\u0105pienie nam miejsca w kolejce do WC jest czasem tak wa\u017cne.<\/p>\n\n\n\n

Pokazali\u015bmy wiele. Za rok zrobimy to znowu. Tylko, \u017ce\njeszcze lepiej.<\/p>\n\n\n\n

My, my, my\u2026 A Oni<\/strong>. Oni czyli przechodnie, kt\u00f3rzy zaczepiani byli na ulicy reagowali r\u00f3\u017cnie. Niekt\u00f3rzy nas omijali. Inni wstydzili si\u0119 i\u015b\u0107 ulic\u0105 Piotrkowsk\u0105 z rolk\u0105 papieru toaletowego przystrojonego naklejk\u0105 z adresem naszej strony internetowej (www.zapalency.org). A reszta zatrzymywa\u0142a si\u0119 by nas wys\u0142ucha\u0107.
Sama mimo, i\u017c w ca\u0142ym przedsi\u0119wzi\u0119ciu uczestniczy\u0142am do\u015b\u0107 kr\u00f3tko spotka\u0142am osob\u0119, kt\u00f3ra jest w trakcie diagnozy, ludzi, kt\u00f3rzy brali ulotki dla znajomych. To m\u00f3j sukces i wk\u0142ad.<\/p>\n\n\n\n

Ok. godziny 21 solidarnie z ca\u0142ym \u015awiatem za\u015bwieci\u0142o si\u0119 w \u0141odzi fioletowe \u015bwiat\u0142o.<\/strong> Pod\u015bwietlony by\u0142 Urz\u0105d Miasta.<\/p>\n\n\n\n

Nast\u0119pny krok to after party. Jak to chorzy na jelita: pojedli\u015bmy kebsa, wypili\u015bmy co nieco. Ma\u0142e grzeszki w wyj\u0105tkowym towarzystwie. Szczeg\u00f3\u0142y zostawi\u0119 dla siebie jako s\u0142odkie wspomnienie.<\/p>\n\n\n\n

Nie my\u015bl jednak, \u017ce by\u0142o \u0142atwo. By\u0142y te\u017c zgrzyty. By\u0142y momenty, kt\u00f3re sprawiaj\u0105, \u017ce my\u015bl\u0119 pier***e to. Na ch*j mnie ten dramat. <\/p>\n\n\n\n

Siadam zawsze w takiej chwili na \u0142\u00f3\u017cku i przypominam sobie po co to robie. <\/p>\n\n\n\n

Robie to<\/strong> dla siebie.<\/p>\n\n\n\n

Robie to<\/strong> dla tych, kt\u00f3rzy ze mn\u0105 dzia\u0142aj\u0105.<\/p>\n\n\n\n

Robi\u0119 to <\/strong>dla takich Martyn, kt\u00f3rych mam nadziej\u0119 b\u0119dzie co raz wi\u0119cej.<\/p>\n\n\n\n

Robie to<\/strong> bo to czuje.<\/p>\n\n\n\n

<\/p>\n\n\n\n

Tutaj<\/a> mo\u017cna zobaczy\u0107 jak wygl\u0105da\u0142y przygotowania do dzia\u0142a\u0144


<\/p>\n\n\n\n

A tak wygl\u0105da\u0142 pod\u015bwietlony Urz\u0105d Miasta<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

\u015awi\u0119tuj\u0119 z wielu powod\u00f3w: moich urodzin, urodzin mych bliskich, z okazji dnia Matki, w Dzie\u0144 Dziecka, 8 marca (Dzie\u0144 Kobiet dla tych zagubionych). W tym roku r\u00f3wnie\u017c 19 maja bra\u0142amczynny udzia\u0142 w bardzo wa\u017cnym dla mnie wydarzeniu. Uczestniczy\u0142am w celebrowaniu \u015awiatowego Dnia Nieswoistych Chor\u00f3b Jelit. \u015awi\u0119towa\u0107 mo\u017cna na wiele sposob\u00f3w. Ja, My \u0141\u00f3dzcy Zapale\u0144cy r\u00f3wnie\u017c […]<\/p>\n","protected":false},"author":2,"featured_media":221,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[6],"tags":[],"class_list":["post-220","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ciag-dalszy"],"yoast_head":"\n#worldibdday2019 ⋆ Stomia z Weso\u0142\u0105<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/stomia.wesolek.care\/index.php\/2019\/05\/21\/worldibdday2019\/\" \/>\n<meta property=\"og:locale\" content=\"pl_PL\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"#worldibdday2019 ⋆ Stomia z Weso\u0142\u0105\" \/>\n<meta property=\"og:description\" content=\"\u015awi\u0119tuj\u0119 z wielu powod\u00f3w: moich urodzin, urodzin mych bliskich, z okazji dnia Matki, w Dzie\u0144 Dziecka, 8 marca (Dzie\u0144 Kobiet dla tych zagubionych). W tym roku r\u00f3wnie\u017c 19 maja bra\u0142amczynny udzia\u0142 w bardzo wa\u017cnym dla mnie wydarzeniu. Uczestniczy\u0142am w celebrowaniu \u015awiatowego Dnia Nieswoistych Chor\u00f3b Jelit. \u015awi\u0119towa\u0107 mo\u017cna na wiele sposob\u00f3w. 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